tag:blogger.com,1999:blog-16789804.post8249831261513024839..comments2023-10-23T13:38:13.848-06:00Comments on The Scoop on Dan: Acclimating to Arkansasdan pattersonhttp://www.blogger.com/profile/01422820512237999017noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-16789804.post-25312699582678457812009-02-01T10:06:00.000-07:002009-02-01T10:06:00.000-07:00Dear Dan, It appears that your acclimation to Ark...Dear Dan,<BR/> It appears that your acclimation to Arkansas is a work in progress. I have a recurring fantasy about moving to some Deep Nowhere town, among them Oklahoma City,El Paso and Tuba City. The cost of living would be low so that we could afford daily massages and internet-ordered fancy foods. We would have the New York Times on line. Perhaps meet an eccentric genius hiding out from life who would make it all worthwhile. I don't know why this happens to me, but I know that it is attached to my deep sense of dread for every place but very big cities with subways and taxis. <BR/> So what is the difference between living in Little Rock, say, and living in a monastery? Both would be quiet with not much to do but pray, but I reckon that the monastery can seem much more attractive. The atmosphere is spiritual, while Little Rock's is suffused with the presence of the absence of the Clintons, something I don't think I would like to experience. <BR/> If you have the time, I would love to read something from you, Susan or Julia on what unexpected stuff you have encountered there. I have a feeling, somehow, that it is going to get better, and then before you know it you will be home.<BR/>Love to all,<BR/>Joesigunhttps://www.blogger.com/profile/11314253297860907914noreply@blogger.comtag:blogger.com,1999:blog-16789804.post-27444436253039757142009-01-31T19:50:00.000-07:002009-01-31T19:50:00.000-07:00Dan -I am a 40-year old male otherwise healthy, di...Dan -<BR/><BR/>I am a 40-year old male otherwise healthy, diagnosed with MM in November. I spent the entire week in Little Rock (we live in Los Angeles) being poked, prodded, drained of all my blood, etc. Surprised we didn't run into you in the waiting room, although perhaps we did.<BR/><BR/>I would LOVE to compare notes with you as I am going to decide this week how much of Total Therapy to do in Arkansas and how much in Los Angeles. My hope is to do induction in Little Rock and the transplants at City of Hope in Los Angeles with a close friend of Bart's, but I'm not sure Bart will go for it.<BR/><BR/>We're both members of a fraternity we wish we didn't join, but I am confident that we will be cured with this protocol. In my 10 weeks of research it has already gone from an outlier to something that even docs that are more "novel drug" guys than "transplant guys" are saying makes sense for many people.<BR/><BR/>You can email me at artisannvandyk at earthlink.net if you like. I also maintain a blog at www.nvdmyeloma.blogspot.com<BR/><BR/>Best wishes and good luck with the rest of induction!<BR/><BR/>Warm regards,<BR/><BR/>Nick van DykNickhttps://www.blogger.com/profile/09733312143898687572noreply@blogger.comtag:blogger.com,1999:blog-16789804.post-53707317217166280162009-01-31T01:02:00.000-07:002009-01-31T01:02:00.000-07:00Dear Dan,Hang in there Dan, we are with you. Bise...Dear Dan,<BR/><BR/>Hang in there Dan, we are with you. Bises, Sigun.sigunhttps://www.blogger.com/profile/11314253297860907914noreply@blogger.comtag:blogger.com,1999:blog-16789804.post-83199738024013280882009-01-25T16:41:00.000-07:002009-01-25T16:41:00.000-07:00Hi Dan,you truly are facing the intensive cure, bu...Hi Dan,<BR/>you truly are facing the intensive cure, but as long as you complain only about waiting for hours and hours, I guess this is pretty good. Especially if the side effect of tiredness is showing up, at least you can sit still, and maybe even take some naps ???<BR/><BR/>I'm back from Vienna again, finished finally the Hypo meetings with Dr. Howorka and her group. The last session of course, was the best, and the extremest, because one participant brought a video, of a Koma, he just had a week ago. It made me cry, because it was so similar to the one I had. And remembering the few moments I was "awake", seeing what the body does to you, while not having any controll, thinking of how Elena had to assist me, ... well I started crying, I almost couldn't take it, the Koma was there with me, the memories of it, and the Dr. voice: YOU ARE THE GROUP that will have this again and again, was scary.<BR/>And sure enough, tonight I had a 28 Hypo, two hours after I was up to 436. It just never ends.<BR/>All I want to say with this is, that we have to continue to fight our diseases, there is no rest !<BR/><BR/>So all I can wish you, is that nothing worse than waiting for hours and hours will happen to you, but we all know that your path is tougher than only waiting.<BR/><BR/>So try to continue your already shown strength, we count on you.<BR/>You started your first steps towards remission, but Mt. Everest is still infront of you.<BR/><BR/>Love you,<BR/>IIngridhttps://www.blogger.com/profile/05977498636876206488noreply@blogger.com