Thursday, September 15, 2005

The Scoop on Dan

Welcome to "The Scoop On Dan" blog. I hope this blog will give all of you who love and care for Dan a way to keep up with his progress as he moves down the path to a healthy and rich life. I thought that this would also give some relief to Susan and Dan who either have to answer the phone or listen to the messages. Not that they aren't welcome, but you can imagine what it takes to repeat the latest news many times a day. I hope that Dan's community of friends and loved ones will have a chance to exchange information, questions or comments. I will try to update information every couple of days and also to provide you with links to web sites that you might find interesting.

Today, September 14, 2005, is the start of Dan's journey towards total recovery. Dan is a SURVIVOR and he and his family are learning to live with cancer. I am attaching his schedule for the coming weeks. If you can't find what you want or need in the way of information just let me know.

Dan’s Transplant Schedule:

8/31 Tests conducted to restage degree of myeloma present (heart, lung, blood, bone marrow tests)

9/7 Meet With psychologist, then with Dr. to review test results and to see if any changes in schedule

9/13 Caregiver class

9/14 installation of additional port for extraction of blood and infusion of chemo drugs

9/14 Infusion of cytoxin---Dan spends night in hospital

9/15 Dan gets shot of neupogen (to help build white cells) and is discharged


9/16—28 Dan to hospital daily to get neupogen shot

9/24--28 Begin apheresis (collection of stem cells from Dan which are then frozen)—4 to 5 hours daily at hospital

10/10 Dan hospitalized and given high dose chemotherapy—melphalan

10/11 second dose of melphalan given

10/10--- Dan hospitalized for 3 to 4 weeks (can receive visitors ---hospitalization will not be in isolation

73 comments:

Brother Ted said...

Friday August 16, 2005

Home, a little fatiguied, and looking forward to a quick passage of the next 8 to 12 weeks.

Brother Ted said...

This is a test. We are all new to this idea of a blog so it will take awhile for everyone to figure out how to post comments.

Brother Ted said...

OKAY, ALL OF YOU WHO WOULD LIKE TO BLOG WITH DAN WILL NEED TO REGISTER. YOU DON'T HAVE TO START A SEPARATE BLOG BUT YOU NEED THE ONLINE IDENTITY. OUR YOUNGER SONS AND DAUGHTERS PROBABLY KNOW ALL OF THIS, I WOULD GUESS EVEN THE GRANDCHILDREN KNOW, BUT FOR MOST OF US THIS WILL BE A NEW EXPERIENCE. GOOD LUCK. EXPERIMENT AND IF YOU HAVE TROUBLE DROP ME A NOTE AT TBETTRIDGE@COMCAST .NET

Dan said...

Thank you to the Bettridges (Ted and his sons, Glen, Greg and Ted) for creating this website and allowing my friends to stay abreast of my treatment regime. I have completed the cytoxin treatment and have tolerated it fairly well. I am now getting daily shots to build up my white cells before we start harvesting the stem cells. Tired but doing OK.

Brother Ted said...

Dan, Glad to see that you figured it out. I'm not sure if we are dense when it comes to these "new fangled " ways of communicating or if it isn't what my brother call AAADDor Age Activaed Attention Deficite Disorder. Hope you are getting some rest and having a relaxing weekend.

Brother Ted said...

Hey for all of you who want to know about the shot of neupogen, that Dan will receive each day until the 28th, here is an easy to understand explanation of the drug:

  Drug-Search


• Company Issues Pacemaker Malfunction Warning

• Deaths Seen With Fentanyl Narcotic Pain Patch

• FDA Reviews Adult Antidepressant-Suicide Link

NEUPOGEN®
(Filgrastim)

DESCRIPTION

Filgrastim is a human granulocyte colony-stimulating factor (G-CSF), produced by recombinant DNA technology. NEUPOGEN® is the Amgen Inc. trademark for Filgrastim, which has been selected as the name for recombinant methionyl human granulocyte colony-stimulating factor (r-metHuG-CSF).

NEUPOGEN® is a 175 amino acid protein manufactured by recombinant DNA technology.1 NEUPOGEN® is produced by Escherichia coli (E coli) bacteria into which has been inserted the human granulocyte colony-stimulating factor gene. NEUPOGEN® has a molecular weight of 18,800 daltons. The protein has an amino acid sequence that is identical to the natural sequence predicted from human DNA sequence analysis, except for the addition of an N-terminal methionine necessary for expression in E coli. Because NEUPOGEN® is produced in E coli, the product is nonglycosylated and thus differs from G-CSF isolated from a human cell

Chris & Lenie said...

Well, with the help of our computer-literate cat, we figured this out. Ted, many thanks to you and your sons for doing this - its a great idea. I'd suggest you relax, enjoy the Broncos, etc - but given last week, maybe you should just relax.

Dan said...

For those who are interested the best website on MM is http://multiplemyeloma.org.

Dan's Mom said...

Thank you,Ted,for doing this. We really appreciate it. I had no trouble getting on here even if I am a grandma. Thank you. Dan's mom

Arlene said...

Testing 123, testing 123. Hi Dan - this is Arlene Blogger. Just checking to see if we're in.

Arlene said...

Success! l

Dan said...

So here's the latest: my white counts are plummeting, as they should be after the cytoxin and I am immunosuppressed: no restaurant food,no exposure to crowds or sick people and feeling a bit tired. the neupogen shots should start boosting the white cells and once this happens not only will I feel better but they will start harvesting my stem cells for transplant next month. This could start as early as Friday. They want to get somewhere in the range of 10 million stem cells to cover at least 2 transplants. Keep the good thoughts and prayers active as we enter this critical phase. thanks.

Brother Ted said...

Dan and other survivors are often in need of platelets, plasma or red blood cells. As I understand the process that Dan will be going through he will need some of the blood products BUT having a bunch of us trying to donate for him does not seem to work in this situation. I would like to encourage all of you to call BONFILS and become a regular donor. The idea behind this suggestion being, that we can keep the supplies of these products plentiful for Dan and others who need these life saving blood components, and at the same time doing something that is so important for our community. BONFILS needs more than 4000 donors a month to meet the needs in Colorado. There is a tremendous feeling that comes from donating blood products, a feeling of serenity when you see that bag being sent off to help someone like Dan, a small child, an accident victim; I could go on and on but I am sure you get the idea. CALL TODAY: 303 366-2000 or 1800 365-0006 While you are at it register for the Marrow Donor Program there is no added cost but there is the great anticipation that you might be called upon to help another person in need.

Susan said...

I just want you all to know that despite hospitals, doctors, bad news, car accidents (I just crashed my car)fear, and tears, I often feel in a state of grace because of all of you. I can never thank you enough for all you have done and continue to do for our entire family.

Catherine said...

Dad,
You are amazing. Keep up the good work! I know you are tired and worn out and want this to be over with but keep on truckin! We all love you and are behind you 115% everyday with our thoughts, prayers, and most importantly love. You are so strong!!!

Ingrid said...

Hi, Dan.
I don't know, whether this will go through, but at least I tried.
Just want you to know, that I think of you and Susan all the time and that I admire you for being able to go through all of that just in the way all of us know how to do it, but I guess none of us would be able to do it.
AND I know for sure that this probably still dark tunnel is getting to an end with the brightest light ever.
Looking forward to preparing you Lasagne soon,
Love,
Ingrid

Chuck and Chris said...

This is a test

Dan said...

Just returned from hospital after shots and blood workup. The white cells bottomed out yesterday and have taken a small turn upward today. I am told they will now rise quickly. Still planning on harvestng the stem cells starting Saturday (could be delayed a day--depending on blood work) My brother Tom is coming into town tomorrow to keep me company during th 4 to5 hours of harvesting each day. He has threatened to read to me "The Myth of Sisyphus" by Camus, to pass the time. I suppose a good nap would be OK, as I am confident I will not stay awake for that scintillating reading.

Mrs. Joshwick said...

Dan,
I've been looking for you for decades and stumbled onto this. I'll be ringing your doorbell soon, and I won't be running away! Mrs Joshwick

Ingrid said...

This is really great, I love this kind of update, and I love reading your e-mails. So so glad you're so brave.
Tell us, whether you or your brother Tom falls asleep first, or whether you like this book :-)

Love,
Ingrid

Bernadette Boulger said...

Friday, September 23, 2005

Dan,
You are a man of incredible courage & so determined to keep fighting. Kelly has been so great about keeping the family posted on your treatment & progress. You continue to be in my thoughts & prayers. Thank you for sharing your journey.
God Bless always,
Pat's Wife Bernadette Boulger

Dan said...

As we had hoped the white cells took a big jump today: from .6 yesterday to 2.9 today. Still waiting for one more marker to be measured but all nurses at the Infusion Center believe they will be harvesting stem cells tomorrow. I guess I will have to endure the reading of the Myth of Sisyphus! Nice to hear from you Ingrid and Bernadette. Thanks for the support.

Arlene said...

Hi Dan and Susan,

Every time I log on here and start to type, I says to myself, noooo, you can't write that and then after I think another minute, I says to myself, noooo, you can't write that either! This goes on and on, so I just wanted you to know that I log on and check out your progress everyday and you all know how much we love you, but what's on my brain will have to wait til we speak.

We're praying hard and keeping all good thoughts. See you soon, (well, as soon as you need me). Love, Arlene

Dan said...

8 hours at the infusion center today reaped a whopping 22 million stem cells. THe goal was to get 10 million cells over 5 days. So, no more apheresis, no more neupogen shots and no more bone pain. We don't know whether this will move the schedule up or not. a 2 week break before the transplant doesn't sound all that bad to me right now. My brother Tom kept me company at the hospital ( 7 a.m. to 3 p.m.)and did not read the Myth of Sisyphus. Does that explain the good harvest?

Brother Ted said...

Yeow, you are the man. This is fantastic news!! I hope you got to enjoy a little bit of Sunday Morning. I hate the summer schedule when the program comes on so early. Have a great Sunday!

Ingrid said...

Hi Dan, what great news, I´m so proud of you!!! You just confirm step by step that you make that, really great!!!

I am in Vienna now and Byron joined me yesterday and as he is jetlagged we´re just taking it easy talking a lot, and thinking so much of you.

Glad for you, Tom didn´t read the Myth of Sisyphus.

the other ted said...

Hey Dan,

So it occurs to me that you are going to have a little bit of free time on your hands and I have been thinking of things to occupy your time. What do you think? Books, DVDs, board games, playstation (kidding), Lexis Nexis? What would you like to keep that monstrous brain of yours occupied? Keep in mind we can also do books on "tape" (actually MP3) through your iPod if that is of any interest. Give it some thought and let me (or any of the Bettridge clan) know and we'll work it out. I look forward to seeing you and Susan soon.

Ted

Dan said...

This blog is the coolest thing I've ever seen. Thank you, thank you, thank you to the Bettridge clan for bringing us all into the 21st century! Ted, in answer to your invitation, I have some books on tape and some CDs that I would like loaded onto the ipod you gave me, but my computer doesn't have a CD burner. Can you help? and as for my brother TOm, since he escaped having to drive me to the hospital and sit with me for 8 hours, we have put him to work painting bathrooms in our house and doing some general cleanup. He hires out at a cheap rate.

Shawn and Jaike said...

Wow, Vienna, North Dakota, North Carolina, you certainly have quite the cheerleading squad Dan!! We think of your strong family often. You are some of our all time favorite folks and we love you. I'm glad that things seem to be going so well. Keep up your spirits. Sorry about the car Susan. Glad you are ok. Jaike would like to know if you ever got his post card from the Little Big Horn. The airline lady in Billings said she would send it, but....
We send love and light. Shawn and Jaike

Dan's Mom said...

I want to thank you again,Ted,and family for doing this. It is wonderful. It is also wonderful that Dan is doing so well with the stem cells. We are all elated. It is great to read all the nice things people write about my son,I love it. Thank you so much,eveyone. Dan's Mom

the other ted said...

Hey Dan,
I'll come by and pick up the books on tape whenever is convenient for you. Just give me a call and let me know when that might be.
I may need to borrow the iPod for a day or two but it will be no problem to get them onto your playlist.
Ted

Dorothy said...

Dan and Susan, what a neat idea this blog site! I for one am very glad to be able know how you are doing without having to have Susan repeat things over and over again!

22 million stem cells!!! How absolutely wonderful!! We lite our candles on Sunday and we all had postive thoughts that all will go well!

Rebecca said a special prayer for "Dan the Man"!!

Dan and Susan, we are there for you! Love to you and Catherine and Julia! The Seals

Chuck and Chris said...

Have been thinking of you and your family this past weekend and wondering if they began to collect your stem cells.
You are in our thoughts and prayers.

Chuck and Chris said...

Hey Dan and Susan,
Just figured out how to read all the comments that have come onto the blot site while we have been gone. What wonderful news that they were able to collect all of the stem cells they required in an 8 hour period. Dan, that stubborness of yours is doing its thing for you! So glad that your brother is here to read to you and to be your Handy Dandy goofer! Tell Tom this is being at the right place at the right time. I will give Susan a call and see when is a good time to visit and see what we could do to help.
Prayers continuing - this is the night for my prayer group - and I have a bible study this morning.
Much love to all of you.

Jaike and Shawn said...

Wed. Sept. 28

Hi Dan and Susan,
My first question is who is Mrs Joshwick and has she dropped by yet? This is your last day for your NEUPOGEN shots. Hope all is good and that the harvest soon begins. I keep checking the blog to get an update. Our thoughts and prayers are with you. Love and light. Shawn

Dan said...

welcome to the blog all you new bloggers. How nice to hear from you. Shawn, we are setting records by the day. In addition to Colorado, this blog has postings from, of course, North Dakota, as well as Vienna, Siena (Italy), Texas,New York, California,and North Carolina. Thank you all for your prayers and good wishes. Jaike, we did receive your postcard from Montana and shame on you for doubting the integrity of a woman's word. In the West, that's good as gold. Mrs. Joshwick is my brother Mike, in drag, drawing on an old childhood game. and a word to Rebecca Seal: thank you for the movie (Cheaper by the dozen) I loved it. As may be evident from the above, I am feeling better now that I don't have to make daily visits to the hospital. The next 10 days hold promise for a partial return to normalcy before the next round of chemo and the transplant. I love you all. Dan

fanodan said...

Excellent news on the stem cell production. Keep up the good work.

Brother Tom said...

I've been here in Denver with Dan and Susan since last Friday. I was expecting to have days and days in the hospital with Dan for the aphoresis, but he kicked out 22 million of the stem cells the first day. I think this was so that he could then put me to work at home for the next 5 days . . . Dan is doing great - he was out driving around terrorizing Denver behind the wheel of his car today. I take off tomorrow - back to Spokane. It's been a great week with Dan and Susan. I hate to leave - and will try to get back soon.

Gail said...

Dan and Susan,
You are an inspiration to loving and life and of course bouncing. love, Gail

Susan said...

Dear Friends
Dear brother Tom left and we are sad for the loss of company, conversation and handyman help. But we now have Jules home for 4 days since completing her first block at CC. It's wonderful!!!
dan woke up this am and said he didn't want to have cancer anymore. So we agreed to get rid of it. After all this time you all remain so constant and caring. We are humbled and grateful for your continued calls, visits, food, help and needlepoint lessons. Much love, Susan

Doris_&_Devraj said...

Dear Dan & Susan:

We have just returned, read your messages and the website comments, appreciate the extraordinary work that the Bettridges have done and value the news of Dan's progress. Dan, we have thought of you often and several temples and churches in two continents have helped us be with you in spirit. With love, friendship and our prayers, your friends the Sharmas.

fanodan said...

Dan Trivia Question of the Day.

What was the name of the homeless person who lived in Dan's basement in 1982?

Dan's Mom said...

Dear FanofDan. I think I know the name of the person who lived in our basement but do you want it published? As far as I know he now has a nice home. Dan's mom

Dan said...

Am I allowed to play? I know the answer since the person was living in our basement (dan and fanodan's) in 1982. As best I can remember my mother was not living with us in Denver in 1982. Perhaps it was just a senior moment on her part.

Chris & Lenie said...

So, I figured out the problem and have been able to get back in the blog. Fanodan, you're good - I know the identity of basement guy. Dano is confused as to your identity.

Nothing splendid has ever been achieved except by those who dared believe that something inside them was superior to circumstances. B. Barton

fanodan said...

Answer to Dan Trivia Question Of the Day# 1: Jeff

Dan Trivia Question of the Day# 2

What green leafy material was found in a baggie in the desk of the Editor and Chief (Dan) of the University of Denver College of Law Law Journal?

Arlene said...

Good Morning Pattersons,

I need you to check your (actually Suze's) e-mail. Clyda and I were loose with the camera this morning. I sent a little piece of home. Sorry I couldn't blog it, but I don't think you can blog pictures. Enjoy! Love you all, Arlene

Brother Tom said...

Had a great time visiting Dan & Susan, and warn all Denverites to watch out for a tough guy who is losing his hair and speeding around Denver.

Dan Trivia Question of the Day #3.

#1: Who provided accommodation for Dan and his friend, Spike, on the occasion of Dan's 21st birthday?

Mary Rose said...

Gail just walked me through this process! Hello Dan! Hope you have an easy time on Monday. I will be sending you lots of love & prayers from Cinci.

Brother Tom said...

Yes, I've had a number of calls and the answer to Trivia Question #3 is at Horrible Howard's.

fanodan said...

Answer to Dan Trivia Question of the Day #2:
Oregano. Dan, as the Editor and Chief, had his own office at the Law School. One of Dan's friends, not on the law review, liked the office and started using it on a daily basis for personal business. Dan was convinced that the friend was doing something illegal. The friend started leaving suggestive notes and, finally, the oregano. Dan, having no experience with either marijuana or cooking, was unable to identify the substance.

Mrs. Joshwick said...

Talked with Dan recently. It was good to catch up after all these decades. He sounded strong and said he was feeling better. He's trying to enjoy this time before he receives the melphalan next week.The comments--well most of them--have been very uplifting to Dan. Keep them coming.
I'll be ringing his doorbell at the hosital October 11th, the day he receives his second dose of melphalan.
Tom was incorrect on his trivia answer to his own question. Horrible was with him for awhile but went home without Dan. I think these trivia questions should be more uplifting like: How many years was Danny an altar boy?

Dan's Mom said...

I agree with Mrs. Joswick.I think we should be looking forward and not backwards. Besides there are some things I do not know about and do not wish to know.I admire Dan for all his strength and determination during this ordeal but I know he will prevail. I love you Dan and pray for you every day. See you soon. Mom

Dan said...

As the hair fell softly from my head to my shirt, my pillow, the sofa, and the rug, Julia, Catherine and Susan exclaimed today: "Dad you're shedding". They immediately embarked on a headshaving mission to acclerate this side effect of the cytoxin and mostly to avoid following me around with a vacuum. My head is now shaved and my family claims I have a nicely shaped noggin and therefore, it's not so bad. I agree, it's not too bad.

Dan said...

the "other Ted" (Ted Bettridge's son) has informed me that I have not been blogging correctly. So here is how I am supposed to be blogging: as to updates on my activities they will be on the blog site, not in the "comments" section. So those of you who don't have comments don't have to scroll through all of the comments to see if there is any updated information on me. The updates will appear at the top of the Scoop On Dan website. I have left one today so you can see where it will be located on the site. THe updates will be provided by either Ted, Susan or me.

Ingrid said...

Hey Dan, this is Byron (with Ingrid looking over my shoulder) in Vienna (Or as they say here, Wien). There is a little church with the most beautiful frescos in it that has a candle with your name on it. Actually, Ingrid, her mother, and I were there last week and it was such a beautiful, sunny day -- a good omen, don´t you think?! Anyway, I am looking forward to seeing you in about 10 days. Ingrid sends love and strudel-- actually I ate the strudel before she could try to send it!:-)

See you real soon,
Byron and Ingrid Bergman

sigun & joe said...

this is a test. hello Dan

Brother Ted said...

COMMENTS CAN BE ADDED TO THE END OF EACH NEW POSTING. YOU ARE WELCOME TO READ AND ENJOY ALL COMMENTS. IF YOU WANT TO RESPOND TO THE LATEST POSTING LOOK FOR THE COMMENTS SECTION AT THE END OF THE LATEST POSTING.

Molly said...

Dan,
I am thinking about you and sending you strength and love for this next difficult step on your path to healing. You are in my thoughts and prayers daily.

Arlene said...

Hi,

I just wanted to say hi this morning. I stayed at Stacey's last night. We were up a lot through the night with Michael James. It was a very rainy, windy and most pleasant night. Lots of time for prayers - all for you guys. Miss you lots. Love you more.

Mary Rose said...

Dan & Susan, I wish with all my heart that you had gotten the news you wanted to hear... You continue to be in my thoughts & prayers every day. Love from Cinci. MAry Rose

Arlene said...

Good Morning,

Just wanted to say that we will be with you all tomorrow in our hearts and prayers. Be safe, be strong and know how much you are surrounded by love.

Ingrid said...

Hi Dan,
here we´re again, after three days of Budapest, also there are two candles lit for you now, so you see, we try our best all over good old Europe.
How are you doing? Strong and looking forward to the next important step?
Keep a smile on your face, I bet you, it helps.
We here have to leave tomorrow, Byron is flying back to Denver and I´m taking the train back to your beloved Siena, I wish we could switch, you staying in Siena and I in Denver.

And, are you getting ready for the soon upcoming Lasagne?
I will be in Denver again on the 26th October in the evening. Just give me the time to go to King Sooper´s to get the ingredients and I will come over and bring you some.

Big hug to you and Susan, Love,
Ingrid

Dorothy said...
This comment has been removed by a blog administrator.
Dorothy said...

Good Evening to the Pattersons. Just wanted to let you know we lighted our candles tonight and said a prayer for all of you. This is great way to communicate with you to let you know that you are thought of constantly. It is especially heart warming to see all the wonderful people who care so much for you all. I loved Ingrid's comment about Siena. Good night Dan and Susan we are praying for better news. Love Greg, Dorothy and Rebecca

Howie said...

Fuzz,

I was great talking to you last Friday. As always, its been too long to catch up on a short phone call. What it did do is spawn a lot of fond memories of high school and UND while I was in the field pheasant hunting this weekend. Long walks with a dog are good for the soul.

I had every intention of getting the blogspot address out to the boys after I returned but I see Dick beat me to the punch. I wish I would have know of this site sooner and I'm sure that the comments will pick up exponentially as the word gets out. By the way, I'm still trying to get ahold of Spike to let him know about it.

Here's hoping everything will work out the next few days/weeks. We're keeping you in our thougts and prayers and trying to send as much positive vibes as possible your way. We'll stay in touch..

Shawn and Jaike said...

Dan and Susan,
I tried to send a note yesterday but screwed something up and it never went. Chapel Hill seems to be making up for the months we had without rain this summer. It has been raining for almost a week. Jaike and I have been thinking good thoughts and prayers for you. Dan, Jaike says that your "stubbornness" is going to pull you through this!! How is that for the pot calling the kettle black! We send love and light. Shawn

Hangster said...

Hi Dan & Sue,
Greetings from Fargo. Howie told me the news and at this moment words can't describe the feelings.
We will keep you in our prayers.
Hang in their my friend, Doug & Deb

Dorothy said...

Hi "Dan the Man", I miss you and hope you are doing better. School is going great,I'm in 7th grade, that is "middle school", I just wanted to let you know my dogs are doing OK and tomorrow is Moonlight's birthday,he will be six. I will write again. Mom and Dad say hello. Love Rebecca "Becca" Seal.

P.S. I'm glad you liked "Cheaper by the dozen". They are coming out with a second version.

Bernadette Boulger said...

I'm so glad that your Mom is in town w/ you. Nobody can take care of you like Mom! Enjoy your visit & treasure your time together. You & your family have been on my mind. And I just wanted to let you know.
Have a restful day.

Tom said...

Hi Dan. I'm glad to hear that the calvary (the stem cells) has arrived. They are attacking in earnest now; you are on your way!! I'm writing from Nagoya, Japan - be in Japan until the 24th, and will be thinking of you every day. Lots of love to you and Susan,
Tom

Ingrid said...

Good morning, while you're hopefully sleeping still, it's only 4 am in Denver now, and having wonderful dreams about your upcoming holiday in Siena in a secluded Villa, on top of a hill, with a beautiful panarama to look at, in a sunny September day of 2006, taking you away Susan for a few hours, so you can meditate and coming back with her and some Lasagne for a great dinner.
That I promise, I will help you find, as soon as you give me the ok for it. And we will have lots of fun only choosing places, not even talking about being here. And being here with you, is much more fun than without you. I had such a great time last year when you were here. It is thanks to the two of you, that Elena (my daughter, for who does not know me) started to think differently about coming to Denver and when she did, she just loved it.
But in the meanwhile, I can't wait being in Denver again, with my wonderful Byron of course, but also seeing you two again, and giving you a stroooooong hug.
Wait for me, I'm coming soon.

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